privacydocs.github.io

Topics Pages - Biometrics - Genetics

Canada

Canada

• Genetic Non-Discrimination Act (local copy)
• Joint Privacy Commissioners (Fed, AB, BC) – Direct-to-consumer genetic testing and privacy

United States

The United States has a wide array of state-level (and some federal) genetic privacy laws; see the US National Human Genome Research Institute’s Genome Statute and Legislation Database. Examples include:

Genetic non-discrimination

• US – Genetic Non-Discrimination Act (local copy)
• US – California – Genetic Information Nondiscrimination Act (local copy)
• US – Illinois – Genetic Information Privacy Act (local copy)

 Direct-to-consumer genetic testing

• US – California – Genetic Information Privacy Act (establishing requirement for direct-to-consumer genetic testing companies) (local copy)
• US – Utah – Genetic Information Privacy Act (establishing requirements for direct-to-consumer genetic testing companies) (local copy)

 Genetic genealogy DNA analysis

• US Department of Justice – Interim Policy on Forensic Genetic Genealogical DNA Analysis and Searching (local copy)
• US – Maryland – House Bill 240 (concerning regulation and oversight for forensic genetic genealogical DNA analysis and searching) (local copy)
• US – Montana – House Bill 602 (requiring a warrant for searches of consumer DNA Databases) (local copy)

 Requiring consent (and providing certain other controls) for collection or disclosure of genetic information

• US – Alaska – Genetic Privacy Act (local copy)
• US – Nevada – Genetic Privacy Law (NRS 629.101-201) (local copy)

---

To suggest new topics, identify additional resources, report broken links, etc., please contact vance at datapolicy.ca

Last updated: October 17, 2021